In nessun ospedale del Regno Unito viene messo da parte un letto singolo per curarmi, afferma il direttore del servizio sanitario nazionale
https://www.theguardian.com/society/2024/sep/27/not-a-single-bed-set-aside-to-treat-me-in-any-uk-hospital-says-nhs-director
di Lunabuna91
7 Comments
Maybe I’m ignorant, but how many conditions have hospital beds set aside specifically for somebody with that illness? As far as I’m aware, hospital beds are for people with any illness that’s debilitating enough to warrant staying in a hospital for care. Wouldn’t setting aside beds for specific illnesses actually reduce the number of patients who can have access to a hospital bed?
I’m not saying people with ME should never get a bed, just that they should have as much right to a bed as anyone with equally debilitating illnesses.
Another issue is whether or not the hospital is actually able to administer effective care. As in, if there’s nothing that doctors or nurses can actually do to help the patient, wouldn’t their bed be better suited to someone who actually can be helped?
ME so severe that it warrants hospitalisation is rare.
Hospital beds set aside for specific conditions aren’t common either except some specific things like strokes, surgery recovery, childbirth, burns units, eating disorder clinics
There’s many other serious conditions that a person can be hospitalised for which will not have “beds set aside”. I don’t really get why there’s this expectation although I get the wider points about care provision
There’s also a similar story to tell about many other conditions but those don’t get posted about regularly on here unlike the very frequent posts on ME
I’d honestly prefer it if UK medicine instead committed serious research money towards this disease, while explaining why they spent the last 30 years exclusively funding grifting psychs who never produced any evidence for their theories & treatments. And why they were continually funded when their papers were shown to regularly manipulate patients, self survey endpoints & the evidence that they frequently lowered primary endpoints & entry criteria midway into trials that were going badly?
Not to mention why did they break the Hippocratic oath by pushing a large % of these ME patients into the severe end of the disease (including Maeve) by inflicting a treatment (GET) which was known as far back as the 1960s & proven by the late 90s to cause temporary and/or permanent deterioration in all patients.
Also why have they been so silent on the 2nd most funded UK ME “researcher” in history, Esther Crawley, who also ran the largest adolescent ME clinic in the world, handing in her medical license & quitting last year. After her own study (MAGENTA) showed that her clinic had been disabling 27% of those under her care (as patients, families & some GPs had been screaming for decades) while showing no improvement for the remaining patients?
Does ME had a standardised test that can be used to show that someone has ME, I say this with the most respect but the two people I know that suffered from ME both turned out to not have ME and used it as a way to withdraw from society, ultimately moving on from ME to saying they have various other diseases till they got mental issues they had.
There isn’t really treatment for it, it needs more research money and for that research to make its way into the NHS. Home care help is on its arse as well.
MIT apparently devised a blood test for it in 2019, but it seems like it hasn’t really gotten further than that point in the years since
My ex had ME. It’s really quite debilitating. Hope it’s not longer referred to as yuppie flu.
Is this the lady who refused TPN even though she couldn’t eat and had a history of an ED?